Tenders are invited for Study Manager Aiming To Improve The Tool For Collecting Quality Of Life Data

Tenders Are Invited For Study Manager Aiming To Improve The Tool For Collecting Quality Of Life Data According To Specific Needs The Specific Objectives Are As Follows: · Identifying, Testing And Formalizing The Most Promising Solutions For Collecting Information On The Perception Of The Quality Of Life Of Children With Multiple Disabilities And Downs Syndrome And/Or Their Families; · Participate In The Production Of Clear Guidance Concerning The Measurement Of The Quality Of Life Of Children With Multiple Disabilities And Trisomy 21 And Their Families. The Service Can Be Broken Down Into 3 Stages. · Identify Possible Solutions To Collect Information On The Quality Of Life From Children With Multiple Disabilities And Trisomy 21 And/Or Their Families · Understand The Communication Difficulties Observed During The Survey Conducted With Scopeo-Kids · Identify In The Literature And Through Interviews With Health Professionals, Community Agents And Families Ways To Facilitate Discussion With These Children · Learn About The Family Quality Of Life Tool And Assess The Potential Of This Tool · Based On The Solutions Identified, Proceed To A Test Of The Most Promising Alternatives · Design Interview/Communication Modalities And Formalize Related Forms · Establish The Data Collection Protocol · Select The Families / Children From Whom To Collect The Data And Obtain Their Consent · Carry Out Methodological Tests · Formalize And Promote The Results Of The Study · Write A Study Report Summarizing The Entire Process · Participate In Workshops To Discuss And Validate Results And Lessons Learned · Propose The Guidance / The Final Versions Of The Tools That It Would Be Possible To Use, Specifying The Conditions Of Use · Expected Results And Indicators For Receiving And Validating The Results Obtained [Disclaimer: The Above Text Is Machine Translated. For Accurate Information Kindly Refer The Original Document.] Tender Link :